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International Symposium on Usher Syndrome: July 10-11, 2014
6th Annual Usher Syndrome Family Conference: July 12, 2014

International Symposium on Usher Syndrome | History in the Making
The Coalition for Usher Syndrome Research presents the Third International Symposium on Usher Syndrome in conjunction with the Sixth Annual Usher Syndrome Family Conference in Boston, Massachusetts at the Joseph B. Martin Conference Center at Harvard Medical School.

The International Symposium on Usher Syndrome will convene on July 10-11, 2014 bringing together researchers, clinicians, geneticists and specialists to examine the latest research and developments in Usher Syndrome. The meeting will enable the exchange of ideas and knowledge among different disciplines in order to facilitate new research and progress that focuses on Usher Syndrome.

The annual Usher Syndrome Family Conference will convene on July 12, 2014 bringing together professionals with those affected by Usher Syndrome. This unprecedented combination of events is expected to engage the largest number of constituents in the history of the Usher Syndrome community.

About Usher Syndrome
Usher Syndrome is the leading cause of deaf-blindness in the world.  Approximately 45,000 Americans are affected by this genetic disorder. Children with Usher Syndrome are born with or develop hearing loss and may also be born with or develop vestibular issues which adversely affect their balance. Early in life they will experience symptoms of a progressive vision disorder known as retinitis pigmentosa (RP). Initially, they will develop night blindness, followed by a narrowing of the visual field, commonly known as “tunnel vision,” leading eventually to complete blindness. Most individuals with Usher Syndrome are legally blind by the time they are young adults.

While there are currently no universally agreed upon treatments for Usher Syndrome, there are a number of treatments nearing clinical trial that could potentially help people with Usher Syndrome.

About the Coalition
Based in the United States, the Coalition for Usher Syndrome Research is a 501(c)3 non-profit organization dedicated to helping families cope with Usher Syndrome while working diligently to find a cure.  Our goal is simple:  Provide hope to families with Usher Syndrome.

The Coalition counts a number of leading institutions and researchers among its members. In the United States, member institutions from coast to coast bring their expertise and commitment to the work of the Coalition, collaborating with partners and researchers from some of the finest international organizations in the world. In short, the Coalition for Usher Syndrome Research strives to be the most comprehensive source of information on Usher Syndrome and the tremendous efforts being made to find a cure.

REGISTRATION: Download Form

ABSTRACT SUBMISSION: Click here for guidelines and to submit an abstract

ACCOMMODATIONS
All Hotel Reservation Deadlines: June 4, 2014
Group rates are available at the following hotels:

The Midtown Hotel, 220 Huntington Avenue, Boston. The Midtown Hotel is a 10 minute taxi ride, or 4 stops on public transportation (the “T”) from the Martin Conference Center. To reserve, use Block Code “USHERSYN” to book online at: www.midtownhotel.com, or call The Midtown Hotel’s Reservations Department directly at +1-617-262-1000, or +1-800-343-1177 and identify the block name: “Usher Syndrome Conference.” Rates:  $159 single/double, $169 triple, $179 quad.

The Inn at Longwood Medical, 342 Longwood Avenue, Boston. The Inn at Longwood Medical is a 5 minute walk from the Martin Conference Center. Online reservations can be made at www.innatlongwood.com, select “Check Availability,” “Special code” then use Group Code: USHE0709. Or call the Hotel’s Reservations Department directly at +1-800-467-2378 or +1-617-731-4700 and refer to the “Usher Syndrome Conference 2014.” Rates: $200 One Bed, $209 Two Beds, $209 Handicap Accessible.

The Colonnade, 120 Huntington Avenue, Boston. The Colonnade is a 10 minute taxi ride, or 4 stops on public transportation, from the Martin Conference Center. Rates: $269 single/double, $299 triple, $329 quad. To reserve, contact Krista Vasi at k.vasi@usher-syndrome.org or +1-978-637-2625.

SESSION TOPICS

International Symposium on Usher Syndrome
Diagnostics, Epidemiology and Population Genetics
Functional Genetics
Phenotypes and Natural History
Preclinical Studies
Therapy and Clinical Trials
Panel Discussion: Funding Usher Syndrome Research

Usher Syndrome Family Conference
Diagnosis
Gene Therapy 101
Psychological Aspects:  Words from the professionals
Psychological Aspects:  A patient journey

CONFIRMED SPEAKERS
Zubair Ahmed, PhD (Cincinnati Children’s Hospital, Ohio, USA)
Kumar Alagramam, PhD (Case Western Reserve University, Ohio, USA)
Maria Bitner-Glindzicz, MD (University College London, United Kingdom)
Hanno Bolz, MD (Bioscientia, Center for Human Genetics, Ingelheim, Germany)
Connie Cepko, PhD (Harvard Medical School, Boston, USA)
Dominic Cosgrove, PhD (Boys Town National Research Hospital, Nebraska, USA)
Arlene Drack, MD (University of Iowa, Iowa, USA)
Mark Dunning (Coalition for Usher Syndrome Research, Boston, Massachusetts, USA)
Anne Fulton, MD (Boston Children’s Hospital, Massachusetts, USA)
Margaret Kenna, MD, MPH (Boston Children’s Hospital, Massachusetts, USA)
William Kimberling, PhD (University of Iowa, Iowa, USA)
Hannie Kremer, PhD (Radboud University Nijmegen Medical Centre, Netherlands)
Jennifer Lentz, PhD (Louisiana State University, Louisiana, USA)
José M. Millán, PhD (Unidad de Genética, Valencia, Spain)
Ilene Miner, LSCW (Gallaudet Research Institute, Washington, DC, USA)
Claes Möller, MD, PhD (Audiological Research Centre, University Hospital, Örebro, Sweden)
Kerstin Nagel-Wolfrum, PhD (Johannes Gutenberg Universität Mainz, Germany)
René Pellerin (The Unstoppable, Vermont, USA)
Christine Petit, MD, PhD (Institut Pasteur, Paris, France)
Eric Pierce, MD, PhD (Massachusetts Eye and Ear, Boston, USA)
Heidi Rehm, PhD (Harvard University, Boston, Massachusetts, USA)
Stephen Rose, PhD (Foundation Fighting Blindness, Maryland, USA)
Anne-Francoise Roux, PhD (Hôpital Universitaire, Montpellier, France)
José-Alain Sahel, MD, PhD (Institut de la vision, Paris, France)
Nizar Smaoui, MD (GeneDX, Maryland, USA)
Edwin Stone, MD, PhD (University of Iowa, Iowa, USA)
Luk Vandenberghe, PhD (Massachusetts Eye and Ear, Boston, USA)
Richard Weleber, MD (Oregon Health and Science University, Oregon, USA)
Monte Westerfield, PhD (Institute of Neuroscience, Oregon, USA)
Uwe Wolfrum, PhD (Johannes Gutenberg Universität Mainz, Germany)

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TIME:  7:30PM - 9:00PM (Eastern Time); 6:30PM - 8PM (Central Time)

Registration Deadline: February 22, 2021
Payment Deadline: February 23, 2021

Cost is $20.00 per webinar. If taking the webinar for RID CEUs, the cost is $30.00 per webinar. Each webinar is .15 RID CEUs. A certificate of participation will be issued after completion of a short quiz on the webinar topic.
Register Herehttps://gallaudet.zoom.us/webinar/register/WN_pnG3GDcMTCyv5jIszi2fxw

DESCRIPTION:
Laurene E. Simms, Ph.D., an African American Deaf woman describes her personal journey wherein she encountered racism, audism, other debilitating -isms, including their intersections throughout her youth and adult life. Moreover, through this webinar, she provides attendees with the theoretical aspects coupled with practical strategies to dissect, dismantle, and discard racism and audism beliefs within the Deaf community and Deaf education systems.

PRESENTER:
Dr. Laurene E. Simms

Laurene E. Simms is Interim Chief Bilingual Officer at Gallaudet University, Washington, D.C. She has been Professor in Department of Education at Gallaudet University for twenty years. Laurene has hands-on experience in the implementation of a bilingual and multicultural educational environment for diverse Deaf and Hard of Hearing learners with the ages of 0-21 and is an acknowledged expert on the topic of using ASL and English as the languages of instruction.

AUDISM WEBINAR SERIES
Gallaudet University's Center for Continuing and Online Education, in partnership with the Deaf Studies Digital Journal and with support from the Office of the Dean of the Graduate School, Research and Continuing and Online Education are proud to present an upcoming series of webinars on Audism in our communities. A group of world-class scholars have joined this series to discuss the impacts audism has upon Deaf people. It is important to note that the concept of audism has long been part of the Deaf community landscape, even before Dr. Tom L. Humpries coined the term in 1975. The collective discourses on the oppression experienced by Deaf people date back to the early nineteenth century, yet has not been analyzed in-depth even in today’s age.  To reaffirm society's commitment toward social equity, our educational webinars will allow a sustainable conversation on audism as a critical step toward a plural and inclusive society.

This is a series of seven live-webinars ranging from theoretical to practical that will be offered throughout the Spring 2021, and they will be delivered in American Sign Language. The format of these Zoom webinars will be 90 minutes long. They are divided into four parts: (1) Introductions: 5 minutes, (2) Main lecture: 50 minutes, (3) Q & A: 30 minutes (this will be moderated and translated into ASL from Q & A Panel in Zoom), and (4) Wrap up: 5 minutes.

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This webinar is designed to introduce court reporters to the field of Broadcast Captioning through the presenter’s experiences.  They will learn the steps to follow to achieve the skills necessary to become a Broadcast Captioner as well as equipment setup and costs, salary potential, employee vs. remote and much, much more!

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NAD Ed Advocacy Workshop open to Teachers, Parents, Interpreters, Administrators, Advocates/Allies (10 contact hours = 1 Professional Learning Unit Credit) (RID CEUs – pending) June 30, 2014 – 8:30 am to 4:00 pm & July 1, 2014 – 8:30 am to 12:45 pm. Cost: $60.00

Presenters:
Bobbie Jo Kite, MA – Laurent Clerc National Deaf Education Center
Heidi Burns, MA – Laurent Clerc National Deaf Education Center
Tawny Holmes, Esq., MA – National Association of the Deaf
Caroline Jackson, Esq., MA – National Association of the Deaf

More information including registration form & workshop abstracts/goals available at: www.gadeaf.org

Sponsored by GAD, Gallaudet University Regional Center, Southeast Region & NAD

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SE DeafBlind Webinar Series
ASL Interpreters Provided/Spoken Spanish Interpreters Provided

TIME:  1:30PM CST; 2:30PM EST

PRESENTER:    David Wiley

Please Register by NOON EASTERN day of Presentation 
REGISTER HERE:  https://uky.zoom.us/webinar/register/WN_AB6zJrxoR5mTTefQkWel1A

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SE DeafBlind Webinar Series
ASL Interpreters Provided/Spoken Spanish Interpreters Provided

TIME:  1:30PM CST; 2:30PM EST

PRESENTER:    David Wiley

Please Register by NOON EASTERN day of Presentation 
REGISTER HERE:  https://uky.zoom.us/webinar/register/WN_JpJ4lHtFQXaijMbJD_Ttiw

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This four-day intensive course will offer application of anatomy and physiology in American Sign Language, with an emphasis on classifiers, specialized terminology used in medical settings, and ethical decision making strategies especially for medical settings.

To optimize learning, the program is offered at a hospital. Participants will analyze and practice interpreting discourse in both classroom and clinical settings. Class time will be interactive and hands-on, with lots of time for practice and feedback in a safe, supportive environment.

This program is facilitated by Karen Malcolm and Nigel Howard.

Requirements: To register for this training, you must have

  • National certification: BEI III or Advanced; NAD IV or V; RID CDI, CI/CT, NIC or above
  • At least 3 years of general interpreting experience
  • Proof of current flu vaccination and TB Mantoux test
  • Plan to attend the entire program. Partial attendance is not permitted.

RID CEUs: St. Catherine University is an approved sponsor for RID CEUs. This program will offer 2.5 RID CMP CEUs in professional studies and assumes some knowledge of the topic.

Registration fee is $250.

Complete the application form at https://www2.stkate.edu/catie-center/dc-medical-immersion to apply for admission. Applicants will be notified of their status on January 26.

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This four-day intensive course will offer application of anatomy and physiology in American Sign Language, with an emphasis on classifiers, specialized terminology used in medical settings, and ethical decision making strategies especially for medical settings.

To optimize learning, the program is offered at a hospital. Participants will analyze and practice interpreting discourse in both classroom and clinical settings. Class time will be interactive and hands-on, with lots of time for practice and feedback in a safe, supportive environment.

This program is facilitated by Karen Malcolm and Nigel Howard.

Requirements: To register for this training, you must have

  • National certification: BEI III or Advanced; NAD IV or V; RID CDI, CI/CT, NIC or above
  • At least 3 years of general interpreting experience
  • Proof of current flu vaccination and TB Mantoux test
  • Plan to attend the entire program. Partial attendance is not permitted.

Registration fee: $250. Covers cost of program only. Participants are responsible for all other expenses (meals, accommodations, transportation, etc.).

Apply: Complete the application form at http://www2.stkate.edu/catie-center/seattle-medical-immersion by February 9 to apply for admission. Applicants will be notified of their status by February 13.

Application deadline is February 9, 2015. Applicants will be notified of their status on February 13, 2015.

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On May 3rd, 2014, Bridges will start a new tradition and throw a Kentucky Derby Party, Nashville Style.  The Inaugural Music City Derby Day will be an afternoon to remember with mint juleps, finger sandwiches, fancy hats, stick horse races, live music and of course, complete coverage of the Kentucky Derby! 

Hosted at the Centennial Art Center, the event will be from 4 p.m. to 8 p.m. Dress in your Derby attire, and ladies don't forget to wear your favorite hat! Patron Packages are on sale now! To purchase Patron Packages contact Kate Haygood at kh@bridgesfordeafandhh.org. For General and VIP admission please see below.

$75
General Admission $75: Admission for one Includes two drink tickets and food.

$125
VIP Admission $125: Admission for one. Includes four drink tickets, food, a commemorative Derby Day Mint Julep Cup, and an invitation to the Patron Party.