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About
The Usher Syndrome Coalition’s mission is to raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness. The Coalition also provides information and support to individuals and families affected by Usher syndrome.
Contact Info
Website Address
Phone
(631) 533-9621 (Video Phone)
Usher Syndrome Coalition
9 Cornerstone Square
Suite 400-224
Westford, MA 01886
United States
Updated: September 30, 2025